Monday, March 17, 2014

Short update as I am home to change and back to hospital.  Kris has had up and down days - he paces all day never resting and by afternoon has worked himself into agitation and aggressive behavior; the meds help him sleep at night.  He actually has been eating pretty good - not full meals but keep fruit and treats and nuts out for him and he grabs some as he passes.  His brother Art and sister Trish were up Saturday and they had a great visit, one of the meds relaxes him (not to the point of non-pacing) but he was actually able to be silly with Art, laugh, and smile his beautiful smile.. with lots of hugs. 

Yesterday (Sunday) was not a good day, as I was home hoping to shower and sleep, they called and said Kris had fallen and asked me to return.  He was agitated and lost balance, hitting the back of his head, a big bump and bruise on his back, etc.  With every hard fall with a hit to the head, he declines even more.  He was unable to pace unless someone was holding him, which then agitated him; finally they gave him something to sleep and then dr felt for his own safety he had to stay in bed :| .. not good for Kris or anyone caring for him.  The one-on-one CNA/Nurses in the room have been awesome, especially the young men which Kris really enjoys and when not, they are very sweet with him but strong.  THe doctors can't seem to find any meds that help control the pain and yet keep him up. They believe a pallative care approach for Kris is needed - meaning to keep him comfortable and control the pain first and foremost - will meet with everyone today, including the hospice team to help when Kris is dismissed to wherever he will be dismissed to.  Will try to write more later - I know you are all praying for Kris (and I), I ask you continue to pray for Kris' peace and God's will.  He has suffered and continues suffering more than any warrior should have to bear. 

He still recognizes loved ones but it comes and goes.  His son Ryan was able to visit yesterday - I think it must have been very hard to see his Dad is this condition but he sat lovingly with him.

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